Little Mix's Jesy Nelson Reveals Heartbreaking SMA Type 1 Diagnosis for Her 8-Month-Old Twins

What started as a mother's intuition has turned into a fight for survival. Former Little Mix star Jesy Nelson just shared devastating news with her 10 million followers: her 8-month-old twin daughters, Ocean Jade and Story Monroe, have been diagnosed with SMA Type 1, a rare and severe muscle-wasting disease.

The Journey to the Jesy Nelson Twins SMA Type 1 Diagnosis

In an emotional Instagram video posted on January 4, 2026, Nelson detailed the "grueling" four months leading up to the diagnosis. Spinal Muscular Atrophy (SMA) Type 1 is a degenerative genetic condition that affects mobility, breathing, and swallowing. According to the NHS, it's the most severe form of the disease, often with a life expectancy of just two years if left untreated.

Nelson recalled how healthcare providers initially dismissed her concerns, attributing the twins' lack of movement to their premature birth. It was Nelson's mother who first spotted that the girls weren't moving their legs as they should. Eventually, feeding struggles led to the definitive and heartbreaking diagnosis of SMA Type 1.

Defying the Odds with Treatment

Despite the deep pain of the news, the 34-year-old singer remains hopeful. She confirmed the twins have already received treatment and expressed her firm belief that they will "defy all the odds." Supporters like JoJo Siwa and other peers have flooded her comments with love, emphasizing that Nelson and her family need all the support they can get right now.